Tuesday, January 17, 2012

Neupogen

Today was my first of what will be at least 8 straight days of trips to Cedars Sinai. Today's trip and the next 6 will be to receive a shot of Neupogen and a blood test. The blood test is to see how my immunity levels are holding up. The Cytoxan I received last week is methodically destroying my white blood cells. The Neupogen increases them in the bone marrow. A normal white blood cell count is between 4 - 11. Mine, today, was 4. Bottom end of normal range. It will soon be below normal so I need to be vigilant to prevent exposure to bad germs. Likely side effects of the Neupogen are bone pain and flu-like symptoms. Haven't experienced them yet, but I'm told I probably will at some point. But, snapshot of where I am today is: feeling fine, both physically and emotionally. BTW: I did follow through on both the bike ride and the tennis match following last week's chemo. As evidenced by the attached photo, my backhand needs some work.

8 comments:

  1. I love the high follow-through on the backhand and the cyclists in MD this past weekend were dressed for ski jumping. Keep it (attitude and playfulness) UP.
    BTW, I thought Iron Lady was an AMAZING film and it rose to Streep's portrayal(although I am far from a MT politico admirer).
    :)
    Kindda cousin Phyllis

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  2. Keep the progress reports coming. You're doing FANTASTIC!

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  3. You are an amazing little brother. I love the positive attitude - wish I had it! I'm so happy you're feeling good. Love you!

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  4. Hey Ed-
    Good news/bad news about what side-effects to expect. Nick forgets we aren't all the same... If he didn't get nauseous, then he expects you not to, too. Not sure I agree on this one. That's the bad news. Good news is I never had any fever or bone pain. Stings a bit as they pump lots of NP into your belly. But not too painful overall. I was also getting Heparin injections, too. So after a while, it looks like I was wearing a black and blue "bruise belt", since Heparin is a blood thinner and leaves hematoma wherever they stick you. But you aren't on blood thinners, correct? No worries... I like the way you embrace feeling good and don't waste time waiting for the next "I feel lousy" shoe to drop. Keep smiling good friend!

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  5. Ed, I'm new to your blog, but went back and read everything from the beginning. I have MM, stage IIIB, with kidney failure. I am now on PD dialysis at home. I will be starting the stem cell mobilization process on Jan. 31. So, I am really following your blog with interest. I am also jealous of how you keep working out and staying fit. (and your good weather!) Good luck with your upcoming treatments!

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    1. Best of luck to you, Sheri. Hope everything turns out well.

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    2. Same to you. Good to know you are still feeling good. And no hair loss! I think that part worries me almost as much as feeling nauseous does!

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  6. I know you will do MUCH better than the Packers did last weekend. Give a call anytime.
    Greg Sessler

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