Thursday, June 1, 2017

A Long Overdue Update

First of all, I’m doing great, thanks.  Been getting quarterly checkups and all my numbers are good.  No evidence of cancer cells in me.  So…as long as what caused it to happen doesn’t cause it to happen again, I’m good.  Thanks to everyone for their thoughts and prayers and efforts to fight the disease through research and funding.  I am eternally grateful. 

I retired from work exactly one year ago today.  I immediately went into training for a bicycle ride from San Francisco to Los Angeles in support of the Arthritis Foundation.  I completed the ride in October and it was a spectacular experience.  The commitment to exercise resulted in my losing about 15 pounds.  Haven’t felt this good since my college days!  And, as a byproduct, I was able to jettison many of the medicines I had been taking.  I’m no longer on statins to control cholesterol.  My HDL, LDL and triglyceride numbers are all within the normal range without the meds.  I also was able to get rid of anti-depressant medication and reduce my blood pressure control meds considerably.  And although the steroids I need to take as part of my MM treatment sill result in some increased glucose levels, it was agreed that I could safely eliminate metformin from my medicine regimen.  (NOTE:  Don’t try to do ANY of this yourself without talking to your doctor!!!!!).  As for MM meds, I still take Revlimid and Prednisone…. which almost seems like a rather quaint approach given all the new med coming out.  But the general agreement is that “as long as it ain’t broke, don’t fix it”.  Plus, I’m not having any real bad side effects.  The one fail…I tried to get off of my reflux meds.  Ended up in the ER.  Looks like those will be around for the long terms. 

Bottom line to all of this...Exercise is good!

Retirement suits me well.  I know some people worry about what they will do with themselves if/when they stop working.  My experience has been just the opposite.  I sometimes muse that I should consider going back to work so I don’t have to work so hard.  I keep busy with my daily exercise routine…which is actually anything but routine…alternating between bike riding and tennis with an occasional hike or yoga session thrown in.  I volunteer with several groups…, most notably the UCLA Hospital Institutional Review Board (IRB) (at the suggestion of Dr. Gottesman for those of you reading this from the Downstate program).   In this role, I review clinical studies in oncology for ethical compliance. 

I did come down with a case of shingles recently…which was no fun at all.  Most common question was…did you get the vaccine?  The answer is…. yes, but over 10 years ago.  And I’ve been advised against getting the vaccine again because it involves a live virus and since MM meds suppress your immune system, it’s a bad idea. So, I ‘ve had to take my chances and my number came up.  Here again, don’t let my experience dictate yours.  Talk to your oncologist about shingles.
That’s all for now.  I will try to be more frequent with updates.  But I always say that, right?