Madison and "Papa" - May 2019
I’ve reached day 50 of the 100 day post transplant mark. I’m told that the I should start feeling
closer to my old self after day 100. There
is also less likelihood of complication after day 100. So I’m ½ way there.
I had a very encouraging doctor’s appointment
yesterday. First of all, all of my
immune system numbers are in the normal range.
That’s extremely encouraging. It means
that the donated immune system is growing in my body nicely. It doesn’t mean I’m as bullet proof as you
are. I still have a baby immune
system. But I don’t need to be as concerned
about bacterial infections as I was up to now.
I still need to be very concerned about contracting something viral….a
cold, the flu, measles (yikes) etc. So I
still can’t go to crowded venues that I typically do in the summer. Dodger Stadium is off limits. Same with Hollywood Bowl. Pageant of the Masters. Or a Jeffrey Epstein accuser
reunion. But I can go out to dinner or
to a movie theater…but use caution. If
someone is coughing or sneezing, I need to relocate. I was also greenlighted to visit with my granddaughter
so long as she doesn’t have a cold. And…of
course… she just came down with a cold, so I’ll have to wait a bit for that
one.
I was also given the green light to suspend having 24/7
babysitting. I’m able to drive. Hospital visits are now 1 day/week instead of
2. All things I’ve been looking forward
to. My doctor told me I should not be
doing much in the way of household chores, like washing dishes or taking out
the garbage (not really, but don’t tell Susan!)
I’m definitely starting to feel stronger. I walked 1.5 miles yesterday without stopping
to rest.
It very much feels like I’m getting a jail release. It’s been hard to be so limited. And it was kind of weird to always have
someone around. I enjoyed having friends around, but it was very uncomfortable on
the days when I had a home health aide on duty whose primary job was to watch
me while I was watching TV. Poor thing
must have been bored out of her mind.
Pleased to share this good report. I expect I’ll get progressively stronger as
the next few weeks unfold. Still no way
to know if we’ve successfully chased the cancer away…. although current
indications are positive. Next step on that
will be a bone marrow biopsy around Day 100.
your story is very inspiring. keep hope alive
ReplyDelete