First of all, apologies to all who tried to register for the
bone marrow registry – only to find that the cut off for being a donor is under
age 60. I didn’t know that when I posted
it. I do appreciate your willingness to
check it out, though. If I may be so
bold….if you have offspring or friends that might be the right age and willing
to check it out, please pass on the link.
Mercifully, I’m home for the next couple of weeks. I spent 8 days at Cedars getting chemo and definitely
experienced some major hospital fatigue during that time. It was a rough
stint. Among other things I developed a
very uncomfortable skin rash, my heart rate dropped at one point to 35 BPM
causing all kinds of concern which proved to be unnecessary, my feet swelled up
several times to where walking was uncomfortable. I was connected to an IV pole most of the
time and had to drag it with me whenever I went to the bathroom, shower or for
a walk around the unit. I had two lumbar
punctures (where they infuse chemo into your spinal fluid, which is where
cancer apparently likes to hide – it doesn’t hurt). On one day, I was infused with each of the
following:
·
Cytoxan (chemo)
·
Methotrexate (chemo)
·
Mensa (infusion to protect my kidneys from
damage due to chemo)
·
Dexamethasone (steroid)
·
Insulin (to lower glucose highs caused by the
steroid)
·
Adavant (anti-nausea)
·
Lovenox (blood thinner)
·
Heparin (anti-coagulant)
·
Rocephin (anti-biotic)
·
Vimcristine (chemo)
And of course, there is typical hospital routine of being woken
every 4 hours for vitals, blood draws, pills, etc. Not to mention having to wear those awful
hospital gowns and eating crappy hospital food when you don’t have much of an
appetite to begin with.
Wah wah wah.
So, I’m home now and feeling OK. Somewhat weakened by all the treatment, but
overall comfortable and happy to be here.
As mentioned, Ill be back to the hospital later this month…hopefully
for just 2-3 days. Meanwhile, the search
continues for a transplant donor. I’ve
been advised that 3 individuals have been identified as 9/10 matches and there
is one 10/10 match out there. We are
waiting to hear back from them.
Fingers crossed.
Glad your home. Wish and pray for the best in finding a donor for you! Hang. In there !
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